Rare diseases need your voice, creative solutions and iWish.
iWish is designed to give rare diseases a voice and a face. Through your help, together we can help change the way the world looks at rare diseases by sensitizing people to their monumental needs.
How to participate:
Picture (optional) - With your contribution, together we can change the way the world looks at rare diseases. We are looking for:
- your artistic picture that will help the world connect or identify with a rare disease or diseases
- pictures that show the world what it is like to live with a rare disease
Contributions can be actual photographs or they can be artistic representations. Don't be afraid to reach out and be creative.
NOTE: any violent, racist, pornographic or offensive pictures will be banned.
iWish (required) - Now its time to write your iWish. Here are the points that you should include:
- A description about your picture (required if you submit a picture)
- Your iWish for a rare disease or diseases (required)
- Your experience with a rare disease or diseases (optional)
NOTE: any racist or offensive content will be banned.
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GENERAL
3/30/2009 08:40
As a young child my mom did her best to shield me from cartoons (which eventually became a futile attempt), and steer me towards educational program …
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Mucopolysaccharidosis Type II
3/30/2009 08:39
Because many rare diseases are genetic, a huge number of those afflicted with them are children, many very young. As a result, many of the stories …
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Pachyonychia Congenita
3/30/2009 08:37
I wish every patient in the world with Pachyonychia Congenita (PC) will connect with other PC patients who understand the pain (emotional and …
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GENERAL
3/30/2009 08:32
I have managed for several years a Swiss national HIV/AIDS project. This work gave me a closer insight into all aspects of HIV/AIDS and I have become …
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Gaucher Disease Type 2, Gaucher Disease Type 3
3/30/2009 07:31
This is my daughter Hannah. She is 7-1/2 months old, and she was recently diagnosed with Gaucher's Disease type 2 or type 3. Both types are a very …
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Myelodysplastic Syndromes, Acute Myeloid Leukemia, Adult
3/17/2009 11:10
Last winter after Christmas my father seemed to have persistent colds and stomach problems. Naturally my mother was slightly concerned but not …
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Menière's Disease
2/25/2009 14:18
Do you like going upside down on a roller coaster? And do you like the feeling of dizziness when spinning around like a top or rolling down a hill?An …
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GENERAL
2/25/2009 14:17
La primera vez que escuché a alguien mencionar algo sobre enfermedades raras me di cuenta que yo no tenía claro a que se refería …
